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At the Atkinson Morley Neuromuscular Centre at St George’s Hospital we run a specialist clinic for the diagnosis and treatment of Spinal Muscular Atrophy (SMA). We treat patients holistically working with a multi-disciplinary team of clinicians and allied health professionals in neurology, neurorehabilitation and respiratory medicine.

FAQs  about Nusinersen Treatment

  1. I wish to be considered for nusinersen treatment at St George’s – what should I do?

If you are already under the care of a Consultant Neurologist at St George’s please contact that consultant and ask to be referred to Dr Clare Galtrey for consideration of treatment for Nusinersen

If you are under a different neuromuscular centre or not currently attending a neuromuscular centre please ask your GP to refer you to Dr Clare Galtrey at St Georges including your contact details and location of previous neuromuscular care centre or place of diagnosis.

We will then contact you to arrange a consultation that may be via the telephone or video initially. Then you will need to attend a face to face appointment for full medical and physiotherapy assessment to determine if Nusinersen treatment is right for you.

We aim to make initial contact with you in 4-6 weeks.

  1. How is COVID affecting assessments and treatment? 
  • We are making initial consultations via the telephone or video to assess the next steps and avoid unnecessary visits to hospital
  • During face to face appointments staff will wear appropriate PPE
  • We can arrange patient transport for patients in our local catchment area of South West London and Surrey.
  • Treatment will be done from Kent Ward, our neurosciences ward. This is classed as a Green ward which means all patients are required to self isolate for 14 days and have a negative COVID swab before admission.
  1. Where can I go for more information?