Motor Neurone Disease (MND)
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SWL and Surrey MND Care and Research Network
In September 2024, St George’s Hospital (SGH) launched its new MND Care and Research Network covering South West London (SWL) and Surrey. This is in partnership with the Motor Neurone Disease Association (MNDA) and, aims to bring professionals together across the region to promote supported and coordinated care for people living with MND and their families.
Specialist MND clinic
The specialist MND clinic is based at St George’s Hospital and also runs monthly at Woking Community Hospital. The clinic diagnoses and manages people with Motor Neurone Disease. Our aim is to treat people living with MND holistically by working with our multi-disciplinary colleagues within the community services across the region and, also with other specialities at St George’s Hospital.
Our clinic is led by:
- Consultant Neurologist, Dr Clare Galtrey
- Consultant Neurologist, Dr Pablo Garcia-Reitboeck
The clinic is supported by our:
- MND Care Coordinators, Lucy Yarham & Vik Rubazeviciute
- Admin coordinator, Sabrina Scarpone-Dugasse
How to refer:
We are happy to accept referrals from GPs via ERS and, secondary care following receipt of a referral letter from the person’s existing neuro consultant.
How to contact us:
For any queries please contact the MND Care Coordinator on 0208 725 3291 or via our email address nervemuscle@stgeorges.nhs.uk.
Who do we work with?
We work closely with a variety of clinical specialities including:
St George’s Respiratory Team
- Respiratory Consultant, Dr Walters
- Consultant Clinical Scientist, Sara Parsons
- Respiratory Nurse Consultant, Jane Watson
- Clinical Scientist, Louisa Williams
St George’s Nutrition Team
- Gastroenterology Consultant, Patrick Dawson
- Clinical Nurse Specialist & team, Emma Pindard
- Contact details: nutrition.nurses@stgeorges.nhs.uk
Neurogenetics Service
- Neurogenetics Clinical Nurse Specialist, Mark McQueen-Mencias
- Contact details: neurogenetics@stgeorges.nhs.uk
In addition, we work with a range of community services including:
- Community MND practitioners & Coordinators
- Community Neuro Rehabilitation Teams
- Hospices
- MND Association Community Support Coordinators
Clinical Trials team
In addition to supportive care, we actively offer people living with MND the opportunity to participate in clinical trials.
UK MND Clinical Studies Group – St George’s Hospital
Our Clinical Trials team includes:
- Neurology Clinical Research Fellow, Dr Bobby Lui
- MND Research Nurse, Hellen Fairley
- Clinical Research Practitioner, Cynthia Lee
Contact details: MNDresearch@stgeorges.nhs.uk
Resources
Useful links for people living with MND, their carers and professional team:
- A guide for those newly diagnosed with MND, providing an overview of the disease and ways to achieve the best possible quality of life from diagnosis onwards.
Living with motor neurone disease guide | MND Association - A guide designed to help unpaid carers supporting someone with MND, to look after their own wellbeing.Caring and MND: support for you guide | MND Association
- An article outlining the evidence for, and the limitations of Riluzole therapy.Should I take Riluzole? – Oxford MND Centre
- The UK MND Clinical Studies Group promotes research across the UK to develop better treatments and care for people affected by MND.UK MND Clinical Studies Group
- A website which reviews alternative and off label treatments with the goal of helping people with ALS make more informed decisions about them.http://www.alsuntangled.com/
- Information about inherited MND and genetic testing.Inherited MND | MND Association
- A decision aid designed to help you think about your options around genetic testing in MND.myMNDgenetest – About
- An educational website about tube feeding in MND/ALS.Home – myTube
- An educational website about breathing support in MND/ALS.https://mybreathing.mymnd.org.uk
- A website where people living with MND, their family members and health professionals talk about what it is like to live with Tracheostomy ventilation (TV).Healthtalk
Events and Training
Upcoming events and training for professionals working with people living with MND: