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Daily living

Social prescribing

Social Prescribing aims to connect people with non-medical support, such as day centres, charities or community groups, in your local community to improve your wellbeing and tackle social isolation. You can ask your GP to refer you to a social prescriber to find out what is available in your area.

There are currently over 70 Social Prescribing Programmes and more than 450 Social Prescribing Link Workers in London. Services are managed by GP Practices, Primary Care Networks, GP Federations, and the Voluntary, Community and Social Enterprise (VCSE) sector. For more information visit NHS England » Social prescribing

Living made easy

This website provides impartial advice and guidance on gadgets, aids and solutions for independent living. There are a range of products to help find functional solutions to stop practical barriers getting in the way of independence.  Living Made Easy – Home

Fatigue management

Fatigue is a common problem for many people with neuromuscular disease. The link below takes you to a workbook which gives you some strategies and ideas of how to manage your fatigue.

INF81 – Fatigue document.v8.pdf (musculardystrophyuk.org)

Driving 

DVLA

You must tell DVLA if you have a driving licence and:

  • you develop a ‘notifiable’ medical condition or disability
  • a condition or disability has got worse since you got your licence

 

To find out further information about driving with a medical condition, applying for a blue badge, and using public transport click the link below. You may be able to claim disability exemption when you apply for vehicle tax.

Driving with medical conditions, Blue Badges and public transport for disabled people – GOV.UK (www.gov.uk)

 

Motability

In exchange of your qualifying mobility allowance, you may be eligible for a car, wheelchair accessible vehicle, scooter, or powered wheelchair, so you can enjoy more freedom and independence.

 

You need to receive the higher rate for mobility, with at least 12 months left, for PIP or DLA

Motability Scheme | Lease a car, WAV, scooter or wheelchair

Queen Elizabeth Foundation Mobility Services

Queen Elizabeth’s Foundation for Disabled People (QEF) is a disability charity based in Surrey. They provide a range of services from driving assessment, along with advice and training with adaptation and solutions to support maximum mobility. You can self-refer; further information QEF Mobility Services | QEF