Red Cell and Haemoglobin Disorders Unit – for Adults with Sickle Cell Disease and Thalassaemia
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We are a Specialist Haemoglobinopathy Centre providing comprehensive healthcare for patients with sickle cell disease, thalassaemia and rare anaemias living in the local area, and also providing specialist services (including apheresis, psychology and pain management) for other hospitals within our networks. We form part of the west London Haemoglobinopathy Co-coordinating Centre, working with Imperial College Healthcare NHS Trust (Hammersmith Hospital and St. Mary’s Hospital) and London North West University Healthcare NHS Trust (Northwick Park Hospital, Ealing Hospital and Central Middlesex Hospital). We work in a multi-disciplinary approach, liaising with other specialties within the hospital to ensure each person is given the best care.
Link to west London HCC site: https://www.westlondonhcc.nhs.uk/
Please use the tabs to click access the relevant information for you.
Haematology Secretary: 0208 725 0885
Carol Rose (Lead CNS for Haemoglobinopathy): 07825 978812
Community specialist nursing team: 03300581679. For the contact details of our Community services, available to those in Wandsworth, please click HERE.
Jenna Love, Rebecca McLoughlin (psychology and pain management team): 07798 581198
Out of hours – in emergency please call 999, for urgent advice please call St George’s and ask to speak to the haematology doctor on call.
For more information about Full circle fund therapies, who provide integrative therapies for people living with haemoglobinopathies please click HERE
You tube channel, including films by our physiotherapist Rebecca McLoughlin https://www.youtube.com/channel/UCJ4mv7UojW5fjjyIBo1isgw
Please follow us on Facebook (Red Cell Pain), twitter (@PMPRed) and instagram (@PMPRed) for news and updates.
What are haemoglobin disorders?
Sickle cell disease and thalassaemia are lifelong, inherited disorders that affect the red blood cells.
Sickle cell disease (SCD) can cause red blood cells to change shape or ‘sickle’. The sickle-shaped cells contain defective haemoglobin, the iron-rich protein that enables red blood cells to carry oxygen from your lungs to the rest of the body. The abnormal cells are also unable to move around as easily as normal shaped cells and can block blood vessels, resulting in tissue and organ damage and episodes of severe pain.
Thalassaemia is a condition that, in its most severe form, causes abnormalities in haemoglobin, the component of blood that carries oxygen from the lungs to the body’s tissues and returns carbon dioxide from the tissues back to the lungs. Some people need regular blood transfusions to avoid complications.
More information on these conditions can be found in our patient information leaflets below and at the following websites:
A helpful document about sickle cell disease and employment can be downloaded here
Patient information leaflets
To see our patient information leaflets, including more information on sickle cell disease and thalassaemia, please click here
All of our leaflets are under Haematology – Red Cell & Haemoglobin Disorders Unit (Adults). The leaflet Sickle cell and thalassaemia service (adults) has all our up to date service information and contact numbers. If you have any comments on our leaflets, please let us know by e-mailing SCDpain@stgeorges.nhs.uk