Patient and Carer Engagement and Involvement in Cancer Services
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We believe that people affected by cancer including cancer patients treated at St George’s (both current and previous), family members, representatives of voluntary local community cancer support groups and members of the public, should be at the heart of our cancer services.
We are committed to delivering quality care that offers a positive patient experience and we need your help to achieve this. This can be accomplished in several ways:
- Providing you with the information you need to support decision-making and make best use of services.
- Sharing your views and experiences of care at St George’s will help us identify specific areas for improvement.
- Ensuring that we use the right tools to collect and analyse patient feedback.
- Providing opportunities for you to help evaluate our services from your expert perspective.
- Working with us as partners to ensure that our services are designed and adapted to respond appropriately to the needs of individual patients and patient groups.
- Working with us as partners to plan, develop and evaluate new initiatives.
Voice – the voice of people affected by cancer at St George’s
Signing up to Voice is a way of keeping in touch with new developments in cancer services, and events and activities that might be of interest to you.
We believe that your experience can help drive cancer services forward at St George’s. You are in a unique position to tell us what works and where we can make improvements. We want to know what is important to you to help us identify the priorities when planning and developing services.
Tell us how services could be improved or share examples of ‘good practice’ and tell us what the organisation does well. We also hold occasional workshops and focus groups, or you may like to share your experiences at one of our listening events.
There are different ways of being involved with Voice, which offer a varied and flexible range of opportunities that fit in with your availability, skills and experience, and interests. You may wish just to receive our Cancer Connect newsletter (Voice – standard) or perhaps you would also like to receive email updates about events for people affected by cancer and email information about patient partnership and engagement opportunities (Voice – plus).
If you would like to join Voice, please click here to complete our online form
Cancer Connect – the newsletter for people at St George’s affected by cancer
Cancer Connect is a twice-yearly newsletter, covering inspiring patient stories, new clinical developments and local support. It is co-produced with Voice and also offers opportunities to use your own personal experience to help us improve cancer services in the future. We hope you enjoy reading this newsletter, whether you are a patient, current or past, a family member or friend of someone with cancer. Copies of the newsletter are also available in the Macmillan Information and Support Centre, cancer clinics and wards.
How can I get involved?
We recognise that the opportunities we offer need to fit around the many other commitments people may have in their lives. We want to offer a range of different opportunities to ensure that everyone affected by cancer can participate. There are many ways in which you can become involved. Different activities and roles will suit a range of interests and skills, and can fit in with the time that you are able to commit.
- Taking part in regular meetings (e.g. our core Voice patient and carer group)
- Taking part in time-limited project groups and activities
- Taking part in one-off events such as Listening events and focus groups
- Sharing your experience to influence others
- Giving feedback on proposals and projects electronically
- Following and responding on social media
Next Listening event
Our next Listening event for people affected by cancer is on Wednesday 20th June 2018. It will focus on our exciting new service, CanChat, for patients by patients. It is a telephone peer support line to provide emotional support and practical suggestions from someone who’s been there and come out the other side.
This service is being set up in response to feedback we have received at past Listening events. The new service is not about offering clinical information or advice but provides a listening ear that will compliment other available support services.
The Listening event will include an overview of the service we are planning at St George’s and table discussions to help shape and develop the service, to ensure it meets the needs of our patients before it’s launched later this year. Please click here for details of how to book your place
Voice core group
Voice is an independent group of cancer patients, carers and family members working together to improve the experience of cancer patients at St George’s. This core group was established in 2007 with the purpose of improving the cancer patient experience through supporting, developing and promoting improved cancer services at St George’s Hospital.
Membership of the Voice core group is one of a number of ways to get involved with improving the patient experience. By sharing experiences of the services used, Voice can help identify areas of good practice and areas of concern. This will help ensure that the services the Trust provides reflect the needs and views of the people who use them.
Voice, in partnership with health professionals, meets monthly at St George’s Hospital to discuss a wide range of issues which affect patients with cancer. Many of these issues arise from the Listening events Voice runs regularly. These are events, often on a specific topic where information may be shared but equally important, they are opportunities for the experiences of people affected by cancer to be heard. From the issues raised, Voice selects two or three topics to focus on in more depth over the following year.
What activities is Voice currently involved with?
- Helping with the evaluation of patient surveys;
- Working together with healthcare professionals, staff and patients using a co-design approach to improve cancer patient experience through the St George’s and Macmillan Cancer Support partnership programme;
- Collaborating with other local, regional and national cancer patient and carer groups;
- Working together to prepare advice leaflets and information resources for cancer patients;
- Holding Listening events for people affected by cancer to help us understand what makes good cancer care, if there are any areas of concern and how we can improve cancer care;
- Holding themed events on specific topics (e.g. chemotherapy, psychological support services) with presentations and the opportunity to share experiences of the themes;
- Developing a telephone peer support service.
How can I find out more?
If you would like to comment on the services you have experienced or have ideas on how we can improve services, we would like to hear from you. For more information about Voice, please contact:
Beverley van der Molen
Macmillan Patient and Public Involvement (PPI) Co-ordinator
Tel: 020 8725 2949 / Mob: 07799 891079
You can also talk to the staff in the Macmillan Information and Support Centre or phone them on 020 8725 2677.