St George’s Tuberous Sclerosis Complex (TSC) service celebrates 25 year anniversary
This week marks the 25th year of our Tuberous Sclerosis Complex (TSC) service, which treats patients with a genetic condition that causes tumours in different parts of the body.
Tuberous Sclerosis affects around 1 million people worldwide. It causes mainly non-cancerous (benign) tumours to develop, which can lead to multiple problems including epilepsy, learning disability, autism, skin changes, kidney, brain and lung tumours.
The TSC clinic at St George’s was opened in 1993, and formally inaugurated in 1998 by the Tuberous Sclerosis Association. It sees and treats patients with TSC from across the UK, and has grown in prominence since treatment for TSC-associated Renal Disease was approved for funding by NHS England in 2016.
To celebrate this landmark week, our staff organised a series of talks with Professor John Bissler, the Kathleen Valles Visiting Professor of Renal and Transplantation Medicine 2018.
Professor Bissler is Professor of Paediatric Nephrology at the University of Tennessee and a world leading voice on Tuberous Sclerosis Complex (TSC) and Cystic Renal Diseases.
Nicholas Annear, Consultant Acute Medicine & Nephrology at St George’s, helped to arrange the talks. He told us: “Since it opened in 1993, the TSC service has grown over the years to become recognised as one of the best in the country. Hosting Professor Bissler for these talks was a real coup for us and we’re thrilled we’ve been able to celebrate our anniversary with him.”
During his visit, Professor Bissler met with Gillian Norton, Chairman, and Jacqueline Totterdell, Chief Executive. After speaking at the St George’s Grand Round, Gillian Norton presented him with a framed print of the original St George’s Hospital building at Hyde Park Corner.