National and local support groups for Haemophilia
Haemophilia Society
UK-wide charity for everyone affected by a bleeding disorder.
Haemophilia Society – haemophilia.org.uk
World Federation of Hemophilia
Global leadership to improve and sustain care for people with inherited bleeding disorders.
World Federation of Hemophilia – www.wfh.org
Global Treatment Centre Directory
Directory of Haemophilia Treatment Centres (HTCs) and haemophilia organisations worldwide.
Global Treatment Centre Directory – www.wfh.org
European Haemophilia Network (EUHANET)
Haemophilia Centre Locator
Enter your location to find your nearest five European Haemophilia Centres.
European Haemophilia Network (EUHANET) Haemophilia Centre Locator – www.hclocator.org
United Kingdom Haemophilia Centres Doctors Organisation (UKHCDO)
Comprehensive information on haemophilia, bleeding disorders and the National Haemophilia Database (NHD).
UKHCDO – www.ukhcdo.org
England Infected Blood Support Scheme
https://inquiry.haemophilia.org.uk/
England Infected Blood Support Scheme – www.nhsbsa.nhs.uk
We support people historically infected with hepatitis C and/or HIV from NHS blood or blood products. We also help families, civil or long-term partners after the death of someone infected.
If you have any queries about the England Infected Blood Support Scheme (EIBSS), you can contact us:
Email: nhsbsa.eibss@nhs.net
Tel: 0300 330 1294 Monday to Friday 9.00am – 5.00pm
You can write to us at:
EIBSS
NHS Business Services Authority
Bridge House
152 Pilgrim Street
Newcastle Upon Tyne NE1 6SN
Emotional wellbeing
Haemophilia Society: It’s good to talk
Novo Nordisk
A health care company which help people with serious chronic diseases including haemophilia
https://www.novonordisk.com/patients/haemostasis-management.html
Living with Haemophilia
Provides a range of general information for patients living with haemophilia
