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Sickle Cell & Thalassaemia Information and Counselling Service aims to improve health outcomes for Wansdworth residents or those with a Wandsworth GP, who have been diagnosed with a major haemoglobinopathy disorder by improving knowledge and understanding of these diseases.

The aims of the service are to

  • Reduce mortality and morbidity amongst haemoglobinopathy patients by working collaboratively with the local acute trusts, primary care and voluntary organisations.
  • Improve the health outcomes for Wandsworth residents who have been diagnosed with a haemoglobinopathy disorder or who are carriers of a haemoglobinopathy gene
  • Provide relevant training, knowledge and understanding of haemoglobinopathy disorders.
  • Decrease hospital admissions and support the delivery of care in the community

The service provides advice, support, and health care, to patients (adults and children) and their families/ carers with sickle cell and thalassaemia living within the borough of Wandsworth.

The service is also responsible for the provision of genetic counselling and screening for patients who are booked to have their babies at St Georges Hospital (SGH) irrespective of place of residence and the monitoring and receipt of the new born blood spot results for Wandsworth  (This is a DOH requirement for each trust).

What we offer

Type of Service

  1. Screening
  2. Genetic Counselling
  3. Specialist Nursing (adult & paediatric) service
  4. Ongoing support to affected individuals
  5. Support for carers, families and relatives.
  6. Link between the hospital and the community.
  7. Education and Training

Clinic/appointment/Test/Intervention/care/support/treatment

  1. Adult Nurse-led clinics – twice wkly and twilight clinic on the last Thursday of each month.
  2. Home visits.
  3. Genetic Counselling clinic (twice weekly)
  4. Vital signs
  5. Height/weight/nutrition advice and monitoring
  6. Blood tests
  7. Medication r/v
  8. Immunisation advice
  9. Smoking cessation advice and support
  10. Advice on alcohol consumption
  11. Specialist Training/advice/education for nurseries, schools, colleges, health professionals etc on request.
  12. Awareness events for patients, health professionals and the general public.